I literally cannot believe I am saying this, but Will ihas officially weaned off keto!! Keto did the trick and retrained Will's brain to accept medication. After close to four years on keto, we were blessed to be able to wean off of keto and just be on medication (and a small dose at that). Will is now living his best life eating the portion sizes he wants and dabbling in a lot more carbs than he has been able to have since he was five years old.
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UPDATE ON WILL: This year has been an amazing year so far! Through Will's dedication and unwavering efforts to stay on the Keto diet, we were able to begin weaning him off of it in January! The whole point of the diet is to retrain his brain to help accept medication or to stop the brain from mis-firing and causing seizures. The diet successfully did this for Will!!!! He is still on medication three times a day and we still have to watch what he eats, but he is living a more normal life every day and has been seizure free for 8 months now! We could not have done this without the support of our family and friends, as well as doctors and dieticians. Will is now enjoying the ability to play sports and will begin his first season of baseball this spring. He is also enjoying eating most of the foods his friends get to eat and not having anything measured to meet a certain ratio. God is so good! We would love to get him off medication as it has bad side effects and can be damaging to his body, so we are praying that cannabis oil becomes an option for him in the near future. But more research needs to be done on cannabis oil and its helpfulness to our kids before the powers to be will allow it in our state. Your donations to this walk and other Epilepsy events will help accomplish this. There is so much more research that needs to be done to find a cure or a way for kids/adults living with epilepsy to have seizure-free days! Help us show Will our support by wearing a shirt that reminds him that he is our superhero and that we are all fighting with him! We would love to have everyone join our Will-Power team and walk with us on June 3rd as we celebrate how far we have come with God's help and how much further we know we will get! We are raising funds to make a difference in the lives of people living with epilepsy. The mission of the Epilepsy Foundation is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
Awesome weekend spent with friends and amazing camp workers! The kids are exhausted, and full of great memories! Thank you Epilepsy Foundation of Indiana!
There are no words to describe how awesome the Sack Seizures event was tonight! I wasn't expecting to get as emotional as I did, but seeing the guys lift Will over their heads, making him team captain for the night, and honoring him with a signed football brought me to tears many times throughout the night. I am overwhelmed with just how blessed we are to have the epilepsy family that we do! Jennifer's work on this event was amazing. Thank you so much for honoring Will and giving us the royal treatment! Will is still grinning from ear to ear and non-stop talking about how he wants to be just like Drake! Your family amazes me!
Thank you, thank you, thank you! We had such a successful walk for Team Will-Power and our epilepsy community!
There are no words to describe how much Will amazes us! We work so hard to keep his seizures under control, but it is Will who lives with this every day! We are so proud of the way he has handled everything and not let his epilepsy define him. We celebrate every seizure free day we get and are so thankful for the support system and community we now belong to. Throughout it all, Terry, Charolet, and I are blessed to go through this with him. #teamwillpower #everydayisagift My Friday night is complete!!! Thanks to our amazing dietitians at Cincinnati Children's Hospital and Chef Rachel, we now have a winning recipe for keto donuts! Tested and approved by Will! Blessed to have another seizure-free day (and Will is happy to have donuts again!)!
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August 2021
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